It’s been a long time since I have written anything for my blog. It’s all a bit of a mess over here and in need of a refresh! I really would like to be writing here again. To do that, I need first to write an update, to bring you up to speed on where I’m at in terms of my chronic illness. Where I am at is an interesting place. I’ve reached a level of acceptance with my health, where although there is still a sense of loss, there is also a much greater sense of peace. Although it seems like strange terminology to use, I feel like I am finally mastering how to be sick!
Tag: ME/CFS
If you are a regular follower of my content, you will know how much I love Glastonbury festival. It’s more than a music festival to me. I’ve written many blogs about this special place and the deep meaning it holds for me. I’ve also vlogged many of my years spent there. My last Glastonbury, in June 2019, was particularly special as it was not long after losing my mum. I found myself doing a lot of my grieving and healing in those magical fields.
I am known for my incredibly open and honest sharing, on all sorts of stigma-related topics. I have many identities, which messages from society tell me I should be ashamed about. I’m transgender, I’m gay, I have mental health challenges, and I am an alcoholic and addict in recovery. My way of overcoming shame has been to share my story proudly. Why then, have I been struggling with shame and embarrassment about using a mobility scooter, and not talking about it?
I am very much behind with my content, especially here on my blog. I have been updating about my progress with my chronic fatigue (or Fred, as I affectionately call it!) over on my YouTube channel. Today though, I thought I might do a summary blog post of all that has happened since I last updated.