Camping has always been something I love. But like many things in my life since becoming disabled, I’ve had to adapt the way I camp. Camping with chronic illness means changing not just where and how I camp but also what I bring to make it manageable and enjoyable
In this blog, I thought I’d share how I’ve adapted my camping setup over the years, plus some of the things I bring and do to make it doable with chronic illness, autism, and limited energy.
As we settle into the new year, I’ve been reflecting on where I am in life, what I want to focus on, and how I can embrace the practice of wintering in 2025. Wintering isn’t just about the colder months; it’s a powerful metaphor for those times in life when we need to pause, rest, and reflect. It’s about embracing stillness and giving ourselves the space to heal and rediscover who we are. This year, my 2025 intentions are centered on taking the time to truly slow down and focus on self-care, allowing myself to let go of old expectations and embrace the quiet.
It’s been a long time since I have written anything for my blog. It’s all a bit of a mess over here and in need of a refresh! I really would like to be writing here again. To do that, I need first to write an update, to bring you up to speed on where I’m at in terms of my chronic illness. Where I am at is an interesting place. I’ve reached a level of acceptance with my health, where although there is still a sense of loss, there is also a much greater sense of peace. Although it seems like strange terminology to use, I feel like I am finally mastering how to be sick!
If you are a regular follower of my content, you will know how much I love Glastonbury festival. It’s more than a music festival to me. I’ve written many blogs about this special place and the deep meaning it holds for me. I’ve also vlogged many of my years spent there. My last Glastonbury, in June 2019, was particularly special as it was not long after losing my mum. I found myself doing a lot of my grieving and healing in those magical fields.
I am known for my incredibly open and honest sharing, on all sorts of stigma-related topics. I have many identities, which messages from society tell me I should be ashamed about. I’m transgender, I’m gay, I have mental health challenges, and I am an alcoholic and addict in recovery. My way of overcoming shame has been to share my story proudly. Why then, have I been struggling with shame and embarrassment about using a mobility scooter, and not talking about it?
I am very much behind with my content, especially here on my blog. I have been updating about my progress with my chronic fatigue (or Fred, as I affectionately call it!) over on my YouTube channel. Today though, I thought I might do a summary blog post of all that has happened since I last updated.
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